Patient and Public Involvement and Engagement (PPIE)

What is patient and public involvement and engagement in research?

Involvement is often described as research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.  It is researchers working with patients and the public to make decisions about research.

Engagement is where the researchers share information and knowledge with the public and can be a two-way information flow; listening, contributing ideas but not making decisions.