Involvement is often described as research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. It is researchers working with patients and the public to make decisions about research.
Engagement is where the researchers share information and knowledge with the public and can be a two-way information flow; listening, contributing ideas but not making decisions.
Our vision is to embed active and meaningful involvement of patient and public contributors into as many aspects of the project life cycle as possible.
1. Listen to voices that are relevant for our research while ensuring that the underserved also have a voice (UK Standard for Inclusive Opportunities)
2. Develop and sustain a culture that values contributions from different perspectives through mutually respectful and productive relationships (UK Standard for Working Together)
3. Provide adequate PPIE training, support and learning opportunities in a timely manner to meet the needs of the projects and contributors’ own development needs (UK Standard for Support and Learning)
4. Involve PPIE members in strategic and operational decision-making to ensure research and decision-making is more transparent (UK Standard for Governance)
5. Use accessible materials to communicate complex methods issues to enable PPIE members to contribute, to expand the reach of our research and maximise impact (UK Standard for Communications)
6. Measure, document and evaluate the impact of PPIE on our research with a view to providing a better understanding of how PPIE can work with methods and policy research, which will be disseminated to others who work in this field (UK Standard for Impact)
This document outlines a strategy for public involvement in EEPRU’s programme of research:
Patient and public involvement and engagement strategy - January 2024 - December 2028 [updated February 2025]
PPI training resources on Health Economics (produced by the PRU ESHCRU II)
Ruth Helstrip – Project Coordinator
ruth.helstrip@york.ac.uk
+44 1904 321 466
Donna Davis – Programme Coordinator
d.l.davis@sheffield.ac.uk
+44 114 222 0801