Understanding public and expert views around the normative decisions made to ‘value’ health-related quality of life in children and young people: a mixed-methods study
Project theme: Outcomes
Developing better methods for measuring and valuing health-related quality of life in children and young people is a priority area for NICE. One aspect of this is the normative decisions that are made around the valuation of health-related quality of life in children and young people for use in Health Technology Assessments submitted to NICE. There is no evidence currently available about the public’s views on how valuation studies should be conducted to generate values for the health-related quality of life of children and young people. However, the normative decisions on how valuation studies should be conducted (whose health should be imagined, which tasks should be used) and who should be involved in them (adults, young people or both) should take societal preferences into account.
Aim
This project aims to better understand public and expert opinion around the valuation of the health-related quality of life of children and young people, in particular around the normative questions of whose preferences to elicit (adults, children or both), from which perspective (who should be imagined is living with impaired health).
Project Team
Philip Powell, Donna Rowen, Clara Mukuria, Anju Keetharuth and Allan Wailoo
Publications
Powell P., Rowen D., Keetharuth A., Mukuria C., Shah K. (2024) Who should value children’s health and how? An international Delphi study. Social Science & Medicine. https://doi.org/10.1016/j.socscimed.2024.117127
Powell P., Rowen D., Keetharuth D., Mukuria C., (2023) Understanding UK public views on normative decisions made to value health-related quality of life in children: A qualitative study. Social Science & Medicine, 116506. doi: 10.1016/j.socscimed.2023.116506
Outputs
UK PROMS conference June 2023, Sheffield